I had to keep him up until Midnight on Monday and wake him up at 4am Tuesday for his test, they needed him to be sleep deprived, which made me sleep deprived!! We had to check in at 7:30 am for his 8:00 am procedure.
They took us back to the 'testing/sleeping' zone to prepare.
Valerie and Zach were his techs!
There's my boy all hooked up! I called him "Skittle Head"!!
Since he had to sleep for part of his test, they wrapped his head mummy style so that none of the nodes would fall off.
He was so tired!
They did all different sorts of tests to read his brainwaves...light tests, hyper ventilation tests and then watched his brainwaves as he slept...in all, we were there for about two and a half hours and he went into many induced seizures.
Here is me and my boy when they were all done and ready to take off his wrap.
Colin with his techs, Valerie & Zach...they were so great!
Getting all cleaned up...he was actually going into a seizure as I took this picture...you can tell by his eyes...
On our way out, he asked to have this picture taken with this very cool coyote...it was made totally out of broken toys!
After leaving the hospital we went and had lunch with Ryan at school...we took Subway...yum!
Then home to take a shower and then naps!
Today we have our follow-up appointment with Dr. B, but we kinda already know what he is gonna tell us...that Colin does indeed have...
...Childhood Absence Epilepsy...
Zach, the tech, told me that on Tuesday. He said to keep an eye on him and not let him swim, ride his bike or play outside alone until he gets his meds.
So today's appointment will be about treatment, I am sure. With Colin on daily meds, he should lead a very 'normal' happy childhood!
Thanks to all of my great bloggy friends for the thoughts and prayers...they were and are greatly apprecitated!
Now it's your turn to join the fun...hand the camera over, say cheese, and smile!
Colin with his techs, Valerie & Zach...they were so great!
Getting all cleaned up...he was actually going into a seizure as I took this picture...you can tell by his eyes...
On our way out, he asked to have this picture taken with this very cool coyote...it was made totally out of broken toys!
After leaving the hospital we went and had lunch with Ryan at school...we took Subway...yum!
Then home to take a shower and then naps!Today we have our follow-up appointment with Dr. B, but we kinda already know what he is gonna tell us...that Colin does indeed have...
...Childhood Absence Epilepsy...
Zach, the tech, told me that on Tuesday. He said to keep an eye on him and not let him swim, ride his bike or play outside alone until he gets his meds.
So today's appointment will be about treatment, I am sure. With Colin on daily meds, he should lead a very 'normal' happy childhood!
Thanks to all of my great bloggy friends for the thoughts and prayers...they were and are greatly apprecitated!
Now it's your turn to join the fun...hand the camera over, say cheese, and smile!
22 comments:
Goodness I have never heard of that before-how scary.
I'm so happy to hear that with meds he will be okay and lead a normal life that.
You got some great pics and were able to document it well. Hope you all were able to get some rest last night!
Maelynn had to do that very test when she was 3 months old - and I can remember it like it was yesterday - every little thing about it! In our case she had reflux that would cause such pain - it would cause her to stop breathing and her body to spaze - once she was on meds it stopped - It is amazing what kids can endure! We will keep you in our prayers!
That picture of him all hooked up made my heart hurt! I am so sorry he (and you and your family) are going through all that! I'm glad to hear with the meds he will be fine! Hugs for you all!
So scary, but at least now you have an idea of what is wrong. My prayers are wit you!
Glad you found out what is wrong. Hopefully he will be happy and healthy and his meds soon.
I'm so glad you have the information and now with meds he will feel so much better. i mentioned before that my husband said that after he began meds he felt better than he had... ever. You took some great pictures. Looks like you had some great helpers. and it didn't look lik Colin needed much help falling asleep. I hope you got a nap later.
I will be praying for your young man, it's hard when your kid is suffering from something.
Shoot Me
Wow great pictures of what was going on. I'm so glad they have it figured out and meds will help. I will keep your young man in my prayers.
I'm sure you guys are all glad that that part is done. I think God is so good that He protected him all this time, especially while playing sports. He is such a strong boy!!!!
Ok..I have to be honest...just looking at Colin there with all those things hooked up to him almost made me want to cry. He is so brave and thankfully they can diagnose him and most importantly HELP him with meds. For that I am thankful. One more big ((((HUG)))))) for you!!
Praying for my bubba! That was alot of wires hooked up to him. That broke my heart. He does look cute in the head wrap though :) I am so glad you know and know how to treat it and it is manageable. Love the picture of you...cute hair do. Is that a headband in your hair? His little tech guy was so young and attractive. LOL
will defnitely include that young man in my prayers and for sure he will be fine :) I agree with Mimi, you look great on that photo :) and i admire both of you for handling this so bravely! hugs!
Stacey,
I was diagnosed with this when I was 3!! However, there was such a stigma with it back then that my mom never told me and I never knew I had it...I was just told I had "episodes". It wasn't until I was sitting in a neurologists office at the age of 40 trying to get control of my migraines and I "had an episode" and he did an EEG that he questioned me why I didn't tell him I had epilepsy???
I was clueless???? However, today, I am on a seizure medicine and doing pretty good in that area at least! Yay!
I know Colin will do great! I'll keep him and your family in my prayers.
Love ya girlie.
He is such a little trooper!!! Glad that he is getting help and that everything is going to be okay.
Stacey..
What a trooper he is. So glad that you have some answers now.
Saying some prayers for safety and complete healing while he waits for meds!
He's such a cutie :-)
So you should be on your way to Colin starting his meds. I hope that your adjustment and his will go smoothly.
Take care
Oh, Stacey... hugs to you for what you're dealing with with your boy. My husband epilepsy, it's controlled by meds. I know it's not necessarily inherited, but a little part of me watches my kids, wondering if any of them would have the tendency. Hoping for more rest for all of you!
You documented this process wonderfully - he will appreciate that when he grows up. I'm glad they were able to determine what the problem is - and all will work out! :)
Hope you all catch up on your zzzz's
Oh, I'm so glad you finally know what you're dealing with. (The NOT knowing would make me crazy!) He looks like he wasn't too intimidated by the whole procedure. You looked pretty good for have no sleep, too.
I have not been visiting any blogs lately and I didn't know your family was going through this! I will be sure to include you all and especially your sweet son in our prayers. We'll be praying the medication does exactly what it's supposed to and that all is well.
Wow, some of that looks pretty scary. So happy to hear that meds will let him lead a healthy normal life. He's such a trooper.
I enjoy taking care of kids at work, thank God for those medical people that are so kid friendly. Looks like he had some really caring techs. How is he doing? I am praying his meds are working, that is a scary thing but you know he is in the palm of Jesus' Hand.
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